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Sickle Cell Meds Still Under-Prescribed

Concerning Data Presented at ASH Conference by Expert From Cincinnati Children’s

About 80% of people with sickle cell disease (SCD) are sick enough that they should be prescribed medications. But in the United States, only 24% have been prescribed a helpful medication. And even among the most severely ill, only 35% have been prescribed a disease-modifying therapy.

These surprising findings were presented Dec. 7 at the 66th American Society of Hematology (ASH) Annual Meeting in San Diego by lead study author Omar Niss, MD, director of classical hematology at Cincinnati Children’s.

“Underuse of these therapies is a real problem,” Niss says. “These medications help individuals with SCD on a daily basis by reducing pain, increasing hemoglobin levels, and in the long term by protecting their organs, and improving their overall well-being.”

Read the full media release from ASH

 


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Publication Information
Original title: 2312 Underutilization of Disease-Modifying Therapies in Sickle Cell Disease: A Real-World Analysis from the ASH Research Collaborative Data Hub
Published in: 66th ASH Annual Meeting and Exposition
Publish date: Dec. 7, 2024
View the abstract at ASH

Research By

Omar Niss, MD
Omar Niss, MD
Director, Classical Hematology